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January 2021 Newsletter


In This Issue
January Thoughts
Monthly Meeting Information
Classes
Support Groups
Men with PD Support Group
Recruiting Board Members
Calendar of 2021 Speakers
List of 2020 Speaker Videos on website
Review of Sue Alvey’s Talk
Ideas for Winter Comfort
Essay: The Joy of Dance
Donor List
Donation Request
Database Form

Janus, god of beginnings, transitions and passages

January Thoughts
 
Janus, for whom January is named, was the bearded Roman god depicted with two heads—looking backward and forward, to the past and to the future, from one condition to another, from one vision to another. He was the doorkeeper of the heavens and is often shown carrying a symbolic key to open gates. More than that, he presided over all beginnings, transitions and passages.
 
Janus is a symbol for our time, a liminal time between what was and what will be in the future. We are quiet now, we are waiting for our future, we are wondering how it will be; we envision a new way of being together after being separated. 
 
This next year will be a reflective one for PSGSC, a time to heal and return to public life. We are in transition. Many of us have experienced sickness, loss, fear, and displacement during 2020. Things have changed and will continue to change. As I leave the presidency of PSGSC, we will have a new Board, ready to face the challenges before us. You will learn more about our new officers and board members in future meetings and newsletters. They are ready for the coming transitions, ready to respond to challenges and support the group. Hopefully, we can begin this new year with open hearts, embracing our fellow humans in their everyday lives. The smallest gestures of acceptance, of listening, of hoping together can do so much to bring us ‘round right’ again as the Shaker song “Simple Gifts” reminds us:
 
’Tis the gift to be simple, ’tis the gift to be free
’Tis the gift to come down where we ought to be,
And when we find ourselves in the place just right,
’Twill be in the valley of love and delight.
When true simplicity is gained,
To bow and to bend we shan’t be ashamed,
To turn, turn will be our delight,
Till by turning, turning we come ’round right.

Recently, I heard an interview with an ICU doctor who explained that the most important work he had done during this Covid time was not medical; it was merely sitting quietly beside patients holding their hands, being with them when no one else could be there. This was his simple gift of love, one human to another.
My hope as I leave this wonderful group is that you will continue to be present to one another as you have been, as the doctor was. Small acts of kindness can make us all feel better.

Always with love,
Nancy Wilson

Monthly Meeting:
Speaker’s Presentation
January 9, 2021
1-2 pm  *  2-3 pm PwP Breakout Group
Zoom link: https://us02web.zoom.us/j/82246981242
 
PSGSC Caregivers Breakout Group
2-3 PM 
Zoom link: https://pmdalliance.zoom.us/j/937547542
Password: 357912 
Date: January 9, 2021 1-2 PM
Speaker: Ekene Enemchukwu, MD, MPH, FPMRS
Topic: “Urinary Dysfunction in PD”
 
Join us to learn more about the causes and possible treatment options. 
 
 
Dr. Enemchukwu received her undergraduate degree from Duke University. She subsequently earned her combined degree in Medicine (MD) and Public Health (MPH) at the University of North Carolina School of Medicine and Gillings School of Global Public Health. She completed her General Surgery and Urology training at Vanderbilt University Medical Center. She then went on to complete a prestigious fellowship under the tutelage of Dr. Victor Nitti, in Female Pelvic Medicine & Reconstructive Surgery with concurrent training in Male Voiding Dysfunction and Neurourology at NYU Langone Medical Center in New York City. Dr. Enemchukwu is currently an Assistant Professor of Urology at Stanford University Medical Center. She practices at Stanford Hospital and Clinics 
Dance Classes:

Accompanied by live music, our dance class integrates movement from many dance forms (ballroom, folk, ballet, modern, etc.) to stimulate both mind and body. We begin class seated in chairs, warm up each muscle group, then progress to the center to focus on balance and spatial awareness. The class focuses on creative expression and artistry while addressing specific physical concerns such as balance, flexibility, coordination, gait, and strength. We aim to create an enjoyable social environment that emphasizes dancing for its own sake while we have fun. The class is open to all. No dance experience required! 

Dance for Parkinson’s with Torri & Brigid
This month: 2nd & 4th Thursdays

January 14, 2021   1-2 pm
Zoom Link:

https://us02web.zoom.us/j/86914088442?pwd=Sy95cVk3S21wTmRkSWd6NEV0RUZEdz09
Passcode: 789204

January 28, 2021   1-2 pm
Zoom Link:

https://us02web.zoom.us/j/89347194993?pwd=djlxOVUya2FpOUF2aEZ6cFQ2ZVlXZz09
Passcode: 805619
 
Dance with Torri & Brigid — Marin Dance Theater
Every Tuesday, 1-2 pm
Zoom Link:
Join our Cloud HD Video Meeting

New Speech Classes:
PSGSC Voice & Communication Class
 
Begins February 3, 2021
10 one-hour sessions
Wednesdays at 10 am
No charge for PSGSC members
  • Practice voice exercises
  • Learn communication strategies
  • Participate in cognitive exercises
  • Social interaction with 4-8 people
 
Contact instructor, Barbara Corinblit, Speech Pathologist
For further information and to enroll: 707-322-6364
Support Groups:
Care Partners Support Groups
 
(1) 2nd Wednesday of Month
January 13, 2021 — 9:30 to 11 am
Join Zoom Meeting:
https://us02web.zoom.us/j/88419360465?pwd=UkFJRysrM2ovVGVyTjFnMVRQUm9CUT09
Passcode: 021152
 
(2) 4th Thursday of Month
January 28, 2021 at 11:30 am to 1:00 pm
Join Zoom Meeting:
https://us02web.zoom.us/j/88671038071?pwd=TjVoOFllYjNkZmRHMytQS2ljeDFWQT09
Passcode: 598098
 
Women With Parkinson’s Support Group
3rd Wednesday of Month
January 20, 2021, 12:30 - 2:00 pm
Join Zoom Meeting:
https://pmdalliance.zoom.us/j/937547542
Password: 357912
 
 
Men With Parkinson’s Support Group — New!
In 2021 we would like to begin a Support Group for men with Parkinson’s. It would take place on Zoom once a month for about 1-1/2 hours at a time chosen by the group. If you are interested please contact Marc Alexander malaxander109@comcast.net 
This is a way to share experiences, develop relationships, laugh and support one another.
Recruiting Board Members
 
PSGSC activities are guided by our Support Group members and community members who assist in planning and presenting programs and services to our group. We want to reach out further to serve our larger community. We are the Board of PSGSC. We want to encourage you to consider joining the Board for two years. There are many opportunities to plan programs, welcome new members, write for the Newsletter, look for speakers, investigate exercise programs, involve the public through publicity, and develop a vision for our future. If you are a person with Parkinson’s, a care partner or know a community person whose skills and interest in working with our group would be valuable to PSGSC, please email Tess Lorraine at: tesslorraine@me.com to talk further about this opportunity. We need your help, and you will find this work manageable and very rewarding.
Please consider helping.
2021 Calendar of Monthly Meeting Speakers — 1st Quarter
                                                            
January 9


 
Ekene Enemchukwu, MD
(an urologist and urogynecologist at Stanford)
 
Urinary Dysfunction in PD
February 13


 
Aaron Daley
(an analyst with the Parkinson’s Disease Clinic at UCSF)
 
Care Partnering
March 13


 
Amir Badiei, MD
(in Movement Disorder fellowship program at UCSF)
Gut and Microbiome
 
Videos of 2020 Speakers Available on PSGSC website:
parkinsonsonomacounty.org
 
Click on Meetings tab, click on Guest Speaker Recordings tab:
 
  • PD & the Gut                     Dr. Triadafilopoulos       Feb, 2020
  • Sleep Issues                        Dr. Zuzuarregui             May, 2020
  • Cannabis for PD                 Dr. Grob                         Aug, 2020
  • Fall Risk and PD                Robert Leavitt, PT          Sept, 2020
  • Nutrition                             Dr. Blake                        Oct, 2020
  • New Medicines for PD       Dr. Vuong                       Nov, 2020
  • Winter Coping Strategies   Sue Alvey, LPCC            Dec, 2020
 
Review of Sue Alvey’s Talk

Our December Monthly Meeting speaker was Sue Alvey, LPCC. She described the various ways that winter darkness, restriction to home, isolation from family and friends can affect our physical and mental health. She suggested many coping strategies that might be useful to us. Please visit our website, click on the Meetings tab, and then the Guest Speaker Recordings tab to find a link to her talk if you missed it, or want to review the points she covered. You might also appreciate the following article “How to Survive Winter.”
 
New York Times Article 12/21/20 
How to Survive Winter
https://www.nytimes.com/interactive/2020/12/20/us/how-to-survive-winter.html?searchResultPosition=7
Ideas For Winter Comfort

The Little Book of Hygge: Danish Secrets to Happy Living by Meik Wiking
 
There are ideas in this book that we might explore during our winter of staying at home and being separated from family and friends. The Danish people always score high on “Happiness” scales. They embrace winter and dark days by practicing Hygge, a term described as: “Coziness of the soul”, “taking pleasure from the presence of soothing things”, “the absence of annoyance.” It is about atmosphere and experience, rather than things.
 
This winter my way of comforting and coping is to sit by my gas fireplace every day about 4 pm with a cup of fragrant tea, a blanket, my little dog, and my phone. I call a friend or family member and have a short chat while I pat the dog and drink the tea. I look forward to this time each day. Once we share stories, memories and laughter, my world seems bigger, yet I am still cozy at home, practicing Hygge
 
Perhaps you will share at our next Monthly Meeting Break-out Groups how you are practicing Hygge this winter, even if you didn’t know that is what you are doing.
 
Nancy Wilson

The Joy of Dance
By Torri Campbell

So You Think You Can Dance?  Well, you can!  And you should!   
Regular physical exercise is one of the best-known interventions for people living with Parkinson’s Disease.  But what happens when you add music and just DANCE? It turns out that the benefits increase exponentially.  There are now over 40 peer-reviewed studies documenting just how beneficial dance is for health and wellness for people living with PD.  
Dance has been shown to:
  • Strengthen bones and muscles
  • Improve gait, posture and balance
  • Reduce tremors
  • Increase stamina and flexibility
  • Reduce stress and tension 
  • Build confidence
  • Provide social interaction/reduce social isolation
  • Decrease depression and anxiety
  • Increase mental acuity
Dance and music/rhythm are two of the oldest forms of human expression and creativity. When we dance we integrate our physical, cognitive, social, and emotional dimensions. We engage our bodies physically (and vigorously!) but we also engage socially and expressively.

Science makes clear the many physical and mental benefits of dance. But dance is art! Dance tells stories. Dance invokes imagery in the service of graceful movement. Dance sparks creativity. The basis of dance is rhythm.  The essence of dance is joy! 
With Gratitude to Our Donors  
 
 
Pam and Mike Siegenthaler
Barbara and Michael McCaffry
Barbara Owens
Nancy Wilson
Judy and Edgar Deas
Marc and Meg Alexander
John and Laura Barrett
Eileen Woodfill
Vernon and Amy Davitt
Bill Jordan
Karen Morris
Horst and Solveig Elter
Kathy Osbun
May Beth Greenway
Cheryl Rennick
Douglas and Ann Walker
Mary Radu and Richard Auger
Mike Siegal and Marie Weber

Donation Request

 

The new year is a perfect time to donate to PSGSC. Help us begin this year brightly with a gift to assure our classes, activities, and outreach will continue and expand in 2021. Our donation jars remain stored as we continue our work in the virtual realm throughout the year. Please think of PSGSC as you join a meeting, support group, or class. Make a donation to honor someone, remember someone, inspire someone with a gift for the future.
 
Please donate today to:
            PSGSC
            c/o Judy Deas, Treasurer
            456 Hidden Acres Road
            Healdsburg, CA 95448

Update Your Information
 
Have you changed your address, telephone, email this year? If so, this is a perfect time to revisit your listing in our database. The easiest way for us to update your information is for you to go to  our website. Click on “More Information” tab, then “Contact Us” tab to find “Database Form.”
Print the form, fill it out, and send it to the address listed on the form.
 
PSGSC Website







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Parkinson's Support Group of Sonoma County · 1717 Yulupa Ave · Santa Rosa, CA 95405-6200 · USA