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On June 28th - 30th, 18 CHAMP1 families along side scientists met for the first time. 

IT WAS A SUCCESS!

The momentum is picking up!

The CHAMP1 community is working together to drive research 

  • Natural history study with Simons Searchlight
  • Fibroblasts @ Coriell Institute 
  • KO/Genetic mouse models are in production

If you are interested in learning more or getting involved visit www.CHAMP1Foundation.org  or email Jeff@CHAMP1Foundation.org

@CHAMP1RESEARCH
@CHAMP1RESEARCH
@CHAMP1Research
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