NIHR CYP MedTech News
January 2019
NIHR Children and Young People MedTech Co-operative (NIHR CYP MedTech) is a national organisation funded by the National Institute of Health Research (NIHR). We are dedicated to developing paediatric medical technology in health areas with high disease burden and unmet needs.
A Spotlight on Rare Diseases

Tell us a bit about yourself
I am Rare Diseases theme lead for NIHR CYP MedTech, Rare Diseases Lead at Birmingham Children's Hospital, and Transition Lead for Renal at Birmingham Children's Hospital. As a Consultant Paediatric Nephrologist, I specialise in treating children and young people with kidney problems. I work closely with Maria Kokocinska to lead the Rare Diseases theme. Maria is an experienced Rare Diseases Research Coordinator based at Birmingham Children's Hospital.

 Dr Larissa Kerecuk
Maria Kokocinska

What is a rare disease?
A rare diseases affects less than 1 in 2000 people. In the UK, 1 in 17 people have a rare disease. We have identified about 7000 different rare diseases so far and 80% of these have a genetic cause. Rare diseases are often chronic and life-threatening, with 75% of rare diseases affecting children and young people. Sadly, 30% of children with a rare disease will die before their fifth birthday and only 5% of rare diseases have treatments.

Why is developing medical technology for children and young people with rare diseases important?
There are many challenges for children, young people, and families affected by a rare disease, as well as for the health care professionals caring for them, including:

It can take years for children and young people with a rare disease to get a correct diagnosis. Many children and young people do not meet the criteria for any condition and are therefore diagnosed with Syndrome Without A Name (SWAN).

There is great variation between services for children and young people affected by rare diseases. Many children, young people, and families are required to travel long distances to receive expert care.
Co-ordination of Care
Children and young people with a rare disease are often cared for by multiple specialities. This can lead to difficulties when co-ordinating care, particularly when young people move from children's to adult health care services.
Emergency Care
Children and young people with rare diseases often need very specialised care. In emergency situations, they may be treated by health care professionals who may not know the best treatment for their condition, which can have life-threatening consequences.

Medical technology has the potential to address these challenges, including using artificial intelligence and machine deep learning to speed up diagnosis, using remote monitoring to detect potential problems early on, using virtual clinics to limit travel to centres of expertise, and using technology platforms to co-ordinate care and provide emergency care plans.

Find out more
Transition Innovation Workshop
On the 09 January 2019, NIHR CYP MedTech held a Transition Innovation Workshop at The Studio in Birmingham. The workshop was supported by the West Midlands Clinical Research Network.

The aim of the day was to identify potential technology solutions for three challenges during the transition from paediatric to adult health services:
  1. Challenges of transitioning young people with multiple health conditions
  2. Challenges of transitioning young people to primary care
  3. Challenges of tracking young people throughout transition

We had a great turn out of health care professionals from multiple specialities, SMEs, big businesses, academics, as well as young people and parents.

We heard talks from Professor Jeremy Kirk, Professor Paul Dimitri, Dr Helena Gleeson, Dr Larissa Kerecuk, Dr Sarah Mitchell, and Dr Priya Narula. Throughout the day, attendees worked together in multidisciplinary teams to generate and develop technology ideas. NIHR CYP MedTech are supporting these ideas to move them forward.

Lab4Living from Sheffield Hallam University collaborated with us to facilitate the day.

Dr Helena Gleeson is our Transition theme lead and a Consultant Endocrinologist at Queen Elizabeth Hospital in Birmingham.
Find out more
Upcoming Events
Robotics in Paediatrics and Child Health Showcase

This showcase aims to demonstrate the potential of robotics within paediatrics and child health and to foster collaborations to accelerate the integration of robotics into paediatric health care.

Academic teams from the UK and Netherlands will showcase their innovative work via a series of short talks and interactive lab demonstrations

Attendance is invited from academics, surgeons, medics, allied health professionals, industry experts, and anyone with an interest in or knowledge of robotics or child health.

Thursday 14 February 2019
09:30 - 13:30
Sheffield Children's NHS Foundation Trust

Register to attend

How to Develop Good Ideas in Paediatric Health and Medicine

NIHR CYP MedTech and the Yorkshire & Humber Academic Health Science Network are hosting a workshop that will explore how ideas can be developed into solutions which can be used by clinicians and patients.

The event will cover the development and commercialisation elements of the innovation journey, with  talks on:
  • Research design and setting up clinical trials
  • Access to funding opportunities
  • Regulatory guidelines
  • Building a value proposition
  • Financial modelling
Attendance is invited from innovators, companies, clinicians, and researchers.

Wednesday 27 February 2019
10:00 - 15:30
Westfield Health, Sheffield

Register to attend
Funding Calls

NIHR Efficacy and Mechanism Evaluation Programme - Researcher-Led Workstream 18/170

This funding call supports studies evaluating interventions that have the potential to make a step-change in the promotion of health, treatment, and improvement of long-term care. 

Maximum award: none
Maximum duration: none

Deadline 19 Mar 2019

More details

Grow MedTech

Grow MedTech is inviting applications for proof of market (£5k, 3 months), proof of feasibility (£20k, 6 months), and proof of concept (£80k, 12 months) projects from academic led teams at Grow MedTech partner institutions. 

Next Deadlines
Proof of Market 15 Feb 2019
Proof of Feasibility 18 Apr 2019 
Proof of Concept 28 Feb 2019 

More details


Invention for Innovation (i4i) Product Development Awards

These awards support any stage of the translational research and development pathway, including the clinical development of laboratory-validated technologies or interventions.  A minimum of two organisations must be involved from either NHS Trust, HEI, or SME. Lead applicants must be based in England.

Maximum award: none
Maximum duration: 36 months

Deadline 24 Apr 2019

More details

Contact our team to find out how we can support your funding application.

Contact Us
If you have an idea, would like to collaborate with us, or just want to find out more, please get in touch.
Submit an unmet need
© 2019 NIHR Children and Young People MedTech Co-operative
NIHR Children and Young People MedTech Co-operative
Sheffield Children's NHS Foundation Trust
Sheffield, South Yorkshire S10 2TH
United Kingdom

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